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The genomes of 10 people, volunteers in the
Harvard Medical School’s
Personal Genome Project, will be available on the website, www.personalgenomes.org.
The project is a great first step to speed medical research progress. Among
those 10 participants are the genetic professor George Church, Harvard
psychology professor Steven Pinker, and technology investor Esther Dyson.
The project hopes to expand to 100,000
participants and its goal is to boost medical research by eliminating the
bureaucratic procedures normally required to protect the privacy of human
subjects. The more genetic information will be publicly available, the faster
research will progress.
The genetic and medical information include
photographs, personal disease histories, allergies, medications, as well as
phenotypes, such as their food preferences or television viewing habits.
The goal of the experiment is to discover
how genes and personal traits are related. The Harvard team will decode the DNA
of those who decide to participate in this experiment for free as long as they agree
to make their genetic data and phenotypes available to the general public.
Those who oppose the Personal Genome Project argue that
making one’s genome available online may have some risks; as an example, anyone
could take a participant’s genome and his personal information and use them to
infer paternity, or claim relatedness to criminals or incriminate relatives.
Those who are interested in volunteering to
become a participant should not be hesitant about publicly sharing any part of
their genome data, including medical history and physical traits, according to Personal
Genome Project Web site. To prevent any negative outcomes, organizers are
committed to providing volunteers with the best information available so that
they can make informed decisions about sharing their DNA sequence and personal
information with the research community and the general public.
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